Brugerinddragelse, telemedicin og compassion
Under dette generiske forskningsfelt forsker vi på tværs af alle specialer og alle aldre. Forskningsfeltet har en systematisk inddragelse af alle interessenter gennem hele forskningsprocessen. Hermed bliver brugerinddragelse et arbejdsredskab, og telemedicin bliver ofte et redskab til at skabe nye kliniske services. Compassion fungerer som værdigrundlag for denne måde at forske på.
Professor Jane Clemensen / E-mail: Jane.Clemensen@rsyd.dk
Lektor Kristina Garne Holm / E-mail: Kristina.Holm@rsyd.dk
Forskningens fokusområder
Vi ønsker at udbygge dette samarbejde på tværs til at berøre alle områder af pædiatrien men også at have særligt fokus på transition ift. relevante voksenafdelinger. Vores erfaring med stærk brugerinddragelse og samarbejde med IT-virksomheder viser, at vores forskningsresultater ofte er klar til direkte implementering.
Vi vil derudover sætte særligt lys på aspekter af ’care’ og ’compassion’ i den pædiatriske indsats og patientforløb. Dette for at understøtte familiernes livskvalitet bedst muligt, så de kan leve et så normalt liv, som den eventuelt kroniske tilstand tillader. Ved at have fokus på såvel (self) compassion ift. klinikerne og forældrene vil vi kunne forebygge udbrændthed hos medarbejdere og forældre. Samtidig vil vi udvikle redskaber, der kan give forældre bedre muligheder for at håndtere hele familiens situation, når et barn er alvorligt sygt.
Nationalt og internationalt samarbejde
Dette forskningsfelt er i sin natur ”grænsebrydende”, idet der ikke fokuseres på bestemte diagnoser men på familierne som helhed. Forskere inden for dette felt vil derfor kunne indgå i alle relevante forskningsprojekter sammen med de øvrige professorer i forskningsenheden og i andre forskningsområder og samtidig igangsætte egen forskning. På det børneonkologiske område har vi en stærkt øget indsats på tværs af de børneonkologiske områder i Vestdanmark.
Jane Clemensen er også tilknyttet Center for Innovativ Medicinsk Teknoloig (CIMT) og centerleder ved Center for Compassion i Sundhedsvæsenet (CSS).
User Involvement, Telemedicine and Compassion
Within this broad research field, we conduct research across all medical specialties and age groups. A defining feature of the field is the systematic involvement of all stakeholders throughout the entire research process. In this way, user involvement becomes an integral part of the research methodology, while telemedicine is often used as a means of developing new clinical services. Compassion provides the underlying value framework for this approach to research.
Professor Jane Clemensen / Email: Jane.Clemensen@rsyd.dk
Associate Professor Kristina Garne Holm / Email: Kristina.Holm@rsyd.dk
Research Focus Areas
We aim to further develop this interdisciplinary collaboration to encompass all areas of paediatrics, while also placing particular emphasis on the transition to relevant adult departments and services. Our experience with strong user involvement and collaboration with IT companies has shown that our research findings are often ready for direct implementation in clinical practice.
In addition, we will place particular emphasis on aspects of care and compassion in paediatric care and patient pathways. The aim is to support families’ quality of life as effectively as possible, enabling them to live as normal a life as their child’s condition, including any chronic illness, allows.
By focusing on (self-)compassion among both clinicians and parents, we aim to help prevent burnout among healthcare professionals and parents. At the same time, we will develop tools that provide parents with better opportunities to manage the situation of the entire family when a child is seriously ill.
National and International Collaboration
By its very nature, this research field transcends traditional boundaries, as its focus is not on specific diagnoses but on families as a whole. Researchers in this field can therefore contribute to all relevant research projects in collaboration with the other professors in the research unit and researchers in other fields, while also initiating their own research projects.
Within paediatric oncology, we have significantly strengthened our collaborative efforts across paediatric oncology services in Western Denmark.
Jane Clemensen is also affiliated with the Centre for Innovative Medical Technology (CIMT) and serves as Centre Director of the Centre for Compassion in Healthcare (CSS).